About SBWNY 

Spina Bifida of Western New York, Inc. is a registered 501 (c) 3 non-profit organization that was founded in 1973 to address the specific needs of people with spina bifida and their families in the Western New York area. 

Our mission is to empower people affected by Spina Bifida to live full and enriched lives, by offering a community of strong relationships, support, and education. 

Our vision: A fully accessible and inclusive community that values people of all abilities.

 The organization accomplishes its purpose through a dedicated network of Board Members, family members, professionals and collaborating organizations.

The Spina Bifida organization is run by a board of directors, made up largely of parent volunteers, individuals with Spina Bifida and community members.  Together, we provide a variety of programs to benefit families in all 8 counties of Western New York: Erie, Niagara, Allegany, Cattaragus, Chautauqua, Orleans, Wyoming, and Genesee.

Please see the current list of our Board of Directors.